As A Parent Of A Down Syndrome Child: What I Didn’t Do
A Down Syndrome Child Is A Challenge: Positive Steps For Parents Of Down Syndrome Children
1. i did not let the voice of disappointment and despair bring me down. Challenge came from some of the closest people to me. Once the blame and fault finding died down, true parenting began.
2. i did not allow negative foreshadowing to win. I entertained the thoughts because they were mixed up with the emotions, but I let them go, they come back, even 10 years later. Accept the life within your hands.
3. i did not stop loving her, how could anyone stop loving their child, especially one with such a gentle soul
4. i did not stop living, running, adventuring, being a mother, nor did her family or her friends, they faced the challenge with aggressive brave hearts and hope; they cooked hundreds of burgers and hot dogs
5. i did not stop hoping others would learn from our experiences, I shared my ideas and we made a charity to help others with the same lovely, beautiful children, all over our community, from Key Largo to Key West
6. i did not give up on the rest of humanity, instead of letting it push me over, I stood my ground and slowly, surely, it shifted to fit to us and our new Down Syndrome daughter, the right people came into, and stayed in, our lives.
7. i did not fail to see the beauty of those around us, especially the beauty of those who were brave enough to ask for help for their Down Syndrome Children.
8. i did not become jaded, angry or bitter, Laila managed to keep me centered, she managed to bring us all compassion in a world often devoid of ‘bash and splash’
9. i did not leave her out of life, but dragged her along with the rest of the two shoes walking fast, and made her keep up, and she did, and she does, never give them a crutch, when their own two feet will do.
10. i did not deny her existence, or try to change her face with surgery, fix her brain with chemicals or make her different….only made her keep up with the walking pace of the rest of us, her metabolism is slower, her heart was weaker, she needs 100 times more effort and more time and more patience, but slowly you’ll find the people around you that can help.